(1999). Quality of life in end-stage renal disease patients after successful kidney transplantation â Development of the ESRD Symptom Checklist Transplantation.
Aberdeen 2016:
30th
Conference of the EHPS/DHP – “Behavior Change. Making an impact on health and health services”
DISEASESPECIFIC QUALITY OF LIFE IN “PUBLIC DOMAIN”
.
END-STAGE RENAL DISEASE SYMPTOM CHECKLIST – TRANSPLANTATION MODULE (ESRD-SCL-TM) Franke, G.H.1, Jagla, M. 1, Witzke, O. 2, Reimer, J. 3 & Morfeld, M. 1 1 University of Applied Sciences Magdeburg and Stendal 2 University Hospital Essen, 3 University Hospital Hamburg
Background
Lorenz from Colmar (1490-1531): “Doctor investigates the content
of a urine flask”. Until the development of dialysis (1945), ESRD always resulted in the death. The ESRD-SCL-TM was developed to assess the specific physical and psychological quality of life (QoL) of renal transplant recipients, with a special focus on side effects of immune system suppression therapy.
Methods
Results The
questionnaire provides information about disease-specific QoL in patients after kidney transplantation. Reliability was good (scales 1, 2, global score) to moderate (scales 3, 5, 6 > 0.70; scale 4 > 0.60). Comparative data of the scale statistics with regards to mean, standard deviation, minimum, maximum, reliability, confidence interval und Reliable Change Index are presented in table 2. 1) Limited physical capacity: 10 Items 2) Limited cognitive capacity: 8 Items 3) Cardiac and renal dysfunction: 7 Items 4) Side effects of corticosteroids: 5 Items 5) Increased growth of gum and hair: 5 Items 6) Transplantation-associated psychological distress: 8 Items A Global Score, summarizing the 43 Items
1.687 patients after kidney transplantation (42% female), mean age 48 years (+/- 13, 18-76) of the University Hospital Essen (Germany; single center, table 1) served as the normative group. Reliability and validity were investigated; Stanine-scores were presented. Feature Mean age Marital Status: Married Not married Education: =12 years Full- or Part-time jobs No jobs Disabled person‘s pass: Yes No Degree of disability in %
Total (n = 1,687) 48.4 years ± 12.6 (Range18–76) 803 (47.6 %) 884 (52.4%) 1404 (83.2%) 283 (16.8%) 482 (28.6%) 1,205 (71.4%) 1,604 (95.1%) 83 (4.9%) 93.8 ± 14.1 (10-100)
Male (n = 985) 48.1 years ± 12.5 (18-74) 481 (48.8%) 504 (51.2%) 794 (80.6%) 191 (19.4%) 351 (35.6%) 634 (64.4%) 494 (96.3%) 36 (3.7%) 93.5 ±14.8 (10-100)
Table 1: Sociodemographic characteristics of 1,687 renal transplant recipients
All questions are scored on a five-point Likert scale. M
±
Min Max Rel Conf RCI
1
0.78 0.57
0
3.80
.80
1.75 2.09
2
0.75 0.62
0
3.63
.81
1.71 2.03
3
0.72 0.59
0
3.86
.71
2.11 2.51
4
0.61 0.59
0
3.60
.66
2.29 2.72
5
0.63 0.65
0
3.80
.75
1.96 2.33
6
0.70 0.56
0
3.75
.75
1.96 2.33
G
0.71 0.47
0
3.49
.93
1.04 1.23
Female (n = 702) 49 years ± 12.7 (18-76) 322 (45.9%) 380 (54.1%) 610 (86.9%) 92 (13.1%) 131 (18.7%) 571 (81.3%) 655 (93.3%) 47 (6.7%) 94.3 ±13.2 (30-100)
Stat. Testing t = -1.50 p
