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journal of mental health promotion VOLUME ONE • ISSUE ONE • APRIL 2002
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CONTENTS EDITORIAL Lynne Friedli . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .2 GUEST Remembering the Forgotten Standard EDITORIAL Louis Appleby . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .6 FEATURE Transcultural Mental Health Promotion Kamaldeep Bhui and Katja Rüdell . . . . . . . . . . . . . . . . . . . . . . . .8
EDITOR Lynne Friedli ASSISTANT EDITOR Mary Tidyman mentality 134–138 Borough High Street London SE1 1LB Telephone 020 7716 6777 Email
[email protected] ISSN 1462–3730
USER ABWA: A Better Way Ahead PERSPECTIVE Eileen Philip . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .16 REVIEW Mental Health Promotion and the Early Years: The Evidence Base: Risk, Protection and Resilience Mike Titterton, Malcolm Hill and Helen Smart . . . . . . . . . . . . .20 RESEARCH Not all in the Mind: Mental Health Service User Perspectives on Physical Health Lynne Friedli and Claudia Dardis . . . . . . . . . . . . . . . . . . . . . . .36 RESEARCH Research and publications update . . . . . . . . . . . . . . . . . . . . .47 UPDATE
The views and opinions expressed by authors are their own. They do not necessarily reflect the views of their employers, the Journal, the Editorial Board or Pavilion Publishing.
PAVILION EDITOR Liz Mandeville TYPESETTING
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Kamaldeep Bhui
Feature
Senior Lecturer in Social & Epidemiological Psychiatry
and Katja Rüdell PhD Student Department of Psychiatry, Barts & London Medical School
Transcultural Mental Health Promotion ABSTRACT This paper explores the main issues in the promotion of mental well-being among ethnic and culturally distinct groups in the United Kingdom. A specific UK focus is adopted because of the local idiosyncrasies in policies, practices and organisational cultures through which health and social care are delivered. In addition, general issues of assessing, weighing up and responding to distress among cultural minorities are also considered. We define transcultural health promotion in terms of ‘cultures’, within which ethnic and racial categories are constructed. Cultures are ‘systems of shared ideas, systems of concepts and rules and meanings that are expressed in the ways human beings live’ (Keesing, 1981). When discussing research evidence we will use the terms used in the original research papers.
Background Cross-cultural research shows that diverse cultural groups and ethnic minorities have different levels of mental disorder and vary in their requirements for and take-up of mental health care. Research evidence over several decades has shown that black people of African and Caribbean origin are over-represented in more restrictive levels of mental health services, that is as in-patients, either voluntarily or by compulsion under the powers of the Mental Health Act (Bhui, 1997; Bhui & Olajide, 1998; Bhugra & Bahl, 2001). Generally speaking, the small volume of work so far on South Asian groups suggests that they are less likely to use in-patient services, but they do visit their general practitioners often (Gupta, 1991; Balarajan et al, 1989). In addition, deliberate self-harm and suicide rates are higher among South Asian women (Soni Raleigh et al, 1990; Soni Raleigh & Balarajan, 1992). However, there are significant information gaps. Other cultural groups such as the Irish have, historically, been given less consideration, since it is often assumed that they have the same health care needs as the majority white British population (Bracken et al, 1998). Furthermore, there is little information on Chinese or Vietnamese people, refugees and asylum seekers, or other white nonBritish groups. The evidence suggests different pathways to in-patient care for individuals from diverse cultural groups, and differential management by professionals (Bhui & Bhugra, 2002a).
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Health promotion is problematic here, as campaigns for better mental health promote the values and lifestyles of the majority culture, which, having no relation to the implicit rules of other cultural groups, are not always taken up. For example, in industrialised nations the treatment of mental distress and mental disorder has evolved into an elaborate system of care in the statutory sector. In many parts of the world people do not automatically consider health and social care agencies as appropriate sources of help. In addition, the structure of psychiatric services, which are often large impersonal organisations, lacking in continuity of care, will also lead some people to avoid services or seek help from alternative sources. For example, African Caribbean people are firmly engaged with mental health services that offer little choice over alternative treatment strategies (Goater et al, 1999; Takei et al, 1998; Davies et al, 1996). As a result, they may fear contact with services and avoid them due to the expectations of forcible treatment that is insensitive to the nature of their health problem, their social care needs and their subjective ‘understanding’ of their condition.
Contextualising transcultural mental health promotion Clinicians, managers and policy-makers now recognise that, among the explanations for variations in service use, culturally determined
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health beliefs, culturally determined styles of coping with distress,
they come into contact with mental health services that replicate
expectations of recovery and previous experiences of services are all
the discriminatory attitudes and procedures found in society in
influential. Social exclusion may be reinforced by variations in
general (Trivedi, 2002; Bhui, 2002). Hence, health promotion
knowledge about available health services and economic resources to
must address these issues at a national, local and individual level
travel to and use services. There are also societal issues to do with the
(see Box 1, below).
position and status occupied by socially excluded groups. Black and ethnic minorities largely live in inner city areas with
BOX 1 Transcultural mental health promotion –
disproportionately high levels of exposure to poverty, noise,
general interventions on national, local and
unemployment and fragmented communities. These environmental
individual levels
factors can affect mental health and can lead to poorer health outcomes, including depression, mediated by stress and the
National intervention
physiological responses to it (Bhui, 2001; Ostler et al, 2001).
•
Address and inform the public of the detrimental
Exercise is known to mediate a protective role against common
effects of cultural discrimination, determine how
mental disorders, and is also advocated as an effective intervention to
these discriminatory attitudes are generated and
reduce mental health and cardiovascular problems (Bhui & Fletcher,
maintained in the general population and challenge
2001). Promoting physical activity is therefore important, but the
them
assumption is that all groups have adequate access to leisure facilities,
•
time for leisure and disposable income to devote to leisure.
construct and conceptualise mental ill-health to
Social exclusion is known to be associated with poorer health.
design culturally appropriate material to promote its
Experiences of discrimination and prejudice further diminish self-esteem and confidence, and can add to a sense of
Establish how individuals from ethnic minorities
prevention
•
Determine cultural groups’ knowledge of mental
disempowerment. In the UK, institutionalised discrimination has
health services and preferences for treatment to
been receiving much attention, largely due to the MacPherson
establish and meet the demand for statutory and
Inquiry into allegations of institutionalised racism and
alternative mental health services in the community
discriminatory practices, but also more recently, due to the
•
Review health and social care in terms of access
Human Rights Act and the Race Relations Act (Amendment
procedures and culturally inappropriate practices to
2000). They emphasise both individual and organisational
determine how they may deter the uptake of
culpability for racial or cultural discrimination and particularly
treatment and care, and remove them
emphasise change in the voluntary and statutory sector, including NHS trusts. The health impact of racism, previously sidelined as
Local
a focus in research and policy, has gathered momentum as a
•
Raise awareness of mental health issues in cultural
subject of legitimate study. Studies of black and other ethnic
groups to ensure appropriate promotion, prevention
minorities subjected to racism in society link poorer health
and detection
outcomes directly to racist experiences producing adverse
•
Support individuals with mental illness from cultural
physiological and psychological effects (Klonoff et al, 1999). To
groups and their families to overcome barriers to
make things worse, if victims of discrimination become ‘mentally
seeking help and accessing effective treatments
ill’ as a consequence, they frequently face discrimination when
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Transcultural Mental Health Promotion
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•
Target specific population groups living locally with
intervene or interfere with their perceived main sources of
particular risks (such as African Caribbean people
distress, which were social issues.
who appear to be at higher risk of schizophrenia and
We found that both groups were troubled by unemployment,
Asian women who are at higher risk of deliberate self-
discrimination, family conflicts and poverty. These are often of
harm and suicide)
greater importance than emotional distress for individuals who face considerable strain during migration and must adjust to inner
Individual
city life predominantly characterised by deprivation. Emotional
•
Intervene with culturally appropriate promotion and
distress in this situation may be considered to be inevitable and
care for individuals from diverse cultural groups with
not amenable to interventions. In addition, it seems that good
mental illness to achieve optimal recovery and
(mental) health is often considered as a prerogative, taken for
prevent relapse
granted until a problem develops. In the absence of early mental health promotion work at a population level, distress and illness
General or specific transcultural mental health promotion
then become established in the context of deeply ingrained
See Box 2, opposite.
behaviours. They are then more difficult to modify.
patterns of work, lifestyle, risk perception and health-related
Health care is not always the first priority for people facing irrespective of cultural group, having a safe place to sleep at night,
Cultural conceptualisation of mental distress
securing a job and regular income, having friendships and social
While people from Western and industrialised countries are generally
contact are more important. If individuals are to struggle to meet
conversant with psychological models of distress, specific cultural
these basic human requirements, it is important for them to be
groups advocate quite different views of what constitutes distress
resilient and avoid mental illness to achieve their goals. To make
(Sulaiman et al, 2001). Cultures that do not hold psychological
health promotion effective for ethnic minorities, careful
models of distress will be less likely to appreciate the role of
consideration is necessary to overcome these obstacles, and to
psychological or psychiatric services in recovery. Alongside the
prioritise health and mental well-being as determinants of well-
necessity to raise awareness and trust is the obligation to ensure that
being. For transcultural mental health promotion, it is even more
the care offered is culturally appropriate, does not violate cultural
imperative to devise appropriate approaches and ways of working.
taboos and does not replicate institutionalised discriminatory
multiple financial and social challenges. Indeed, for all people,
In our ongoing research, Somali people in East and South
practices. Where there is a markedly different cultural understanding
London are reluctant to talk about ‘mental illness’. They equate
of mental distress, including its genesis and resolution, greater levels
this term with severe psychosis and ‘out of control behaviour’
of public awareness of the symptoms of common mental illnesses and
commonly translated as ‘madness’. More distinct and greyer
the range of potential interventions are helpful. This may still not
shades of distress are difficult to communicate, and talking to
promote accessibility to health care if the rationale for the care is not
Somali people in these terms simply perplexed them. Similarly,
communicated, and where communicated is not accepted, and if risk
our work among Punjabi Asians in South London found that
perceptions favour alternative healing traditions.
they were aware of emotional difficulties, but did not consider general practitioners had the necessary expertise or authority to
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BOX 2 Specific issues for transcultural mental
•
Determine and consolidate the different role of treatments in mental health and how professionals
health promotion
can aid recovery and functioning General public
•
Provide detailed education about particular
• •
discriminatory attitudes and challenge complacency
•
Raise awareness among professionals of how transcultural mental health issues require greater
•
•
•
Encourage and enable individuals to take care of their physical health
•
Develop opportunities for sports and activities for
Promote physical activity as a way to promote mental
people with mental illness and educate patients and
health and prevent mental illness; identify the
staff about the beneficial effects of diet and healthy
benefits of a healthy diet and lifestyle and the impact
lifestyles
of alcohol and substance intake
•
Inform individuals about their entitlements and legal rights
skill and resources (health, social, legal, criminal justice, housing)
Increase awareness of groups providing culturally relevant advocacy and social and day care
•
towards them
Avoid admissions through the Mental Health Act
Reduce stigma about mental distress and illness in
• •
Encourage social skills and friendships Increase awareness of the impact of using drugs and
certain communities
alcohol and develop culturally sensitive interventions
Determine and target the origins of stress, distress
to target this
and mental illness
• • • •
Increase awareness of common signs and symptoms
Stigma
of mental distress in self and family and friends
A survey of attitudes assessing the success of deinstitutionalisation
Increase awareness of methods to deal with crises
programmes aimed at reintegrating mentally ill individuals found
(self-help and seeking help)
that minority groups had greater reservations about mentally ill
Increase awareness of services, different professionals
people living close to them, and were more fearful that their children
and their roles
or family would come to some harm (Wolff et al, 1996a). This
Increase awareness among individuals from different
highlights the existence of negative stereotypes of the mentally ill
cultural groups of the importance of social
among cultural groups, which may impede the complete recovery
interaction and support
and successful community functioning of people who have had mental illness. It also suggests that there is a higher level of
People with mental illness
• •
Identify sources of help in a crisis and establish easy
stigmatisation of mental illness among some ethnic groups. The need for culturally sensitive and appropriate information
routes to access them
about mental distress, disorders and the range of treatments and
Increase awareness of the signs and symptoms of
interventions, plus campaigns to reduce stigma, is evident. Some
relapse
excellent mental health promotion material was developed by colleagues in North Birmingham (Mental Health Media, 2000). Because film is a popular and effective medium for
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Transcultural Mental Health Promotion
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communication with South Asian groups, they developed a series
medication without appearing to know what it was for, or what the
of video productions and workbooks on suicide and mental
name of their condition was, even when they were detained in
illness. These raise issues of oppression of women, unequal
hospital (Bhui et al, 2001). Thus, people with diagnosed mental
treatment of male and female children in the household,
illnesses and those in contact with mental health services also need
domestic violence and the daily pressures on men that may be
specific information. The need for such work is especially great where
understood as depression. They show how unemployment,
expectations about recovery differ from the professionals’ views and
financial strain and family conflicts can be managed in a hopeful
even more where the services encountered by recent migrants are
and non-pathological way, while revealing how existing services
different from those found in their home countries.
can play a role in recovery. Drawing on authentic experiences and realities of the lives of South Asian communities can capture
Physical health
their attention while delivering important information. It also
It is known that people with severe and enduring mental illness have
encourages reflection on a range of cultural barriers to better
a higher risk of premature death not only from suicide but also from
mental health, heightening interpersonal communication and
alcohol and substance misuse (Hiroeh et al, 2001). People with severe
showing the possibility of complete recovery from distress.
mental illnesses such as schizophrenia are more likely to smoke
This work can also achieve its goal of a reduction of the
heavily, indicating a high level of addiction to nicotine. They are also
stigmatisation associated with depression and domestic violence.
less likely to be successful at quitting smoking. In addition, even
It is imperative that such materials are unambiguous and do not
though tobacco consumption has been identified as the largest cause
denounce the attitudes and rules that are prevalent in these
of premature death and has been associated with a tremendous
cultures, or pathologise them and ask for their removal.
amount of disability and suffering from smoking-related disease, the
Transcultural mental health promotion should work with people
opportunity to intervene is often neglected in mental health care.
to encourage them to find alternative solutions for mental
Individuals who suffer from mental health problems should not be
distress, possibly promoting the use of traditional and culturally
treated as second-class individuals by health professionals.
appropriate care alongside statutory mental health services. For
During the publication of the revised guidelines for smoking
example, for severe and disabling states of changed function,
cessation in Britain, smoking cessation specialists introduced
medical, social and psychological interventions may shorten
what they flippantly called the ‘Bangladeshi model’ of quitting
social and emotional distress and disabilities.
smoking. They observed that Bangladeshi individuals who claimed to have given up smoking could still be found to have
Mental health promotion is relevant to everyone
the abnormal levels of carbon monoxide only found in smokers.
Preventive public health campaigns are often perceived to be the
system that equated ‘stopping smoking’ with not buying
mainstay of mental health promotion because they reach more people
cigarettes. When cigarettes were passed on from others, which
and produce greater population health benefits than strategies that
appeared to be a common phenomenon in the Bangladeshi
only promote health among those with diagnosed conditions.
community, they regarded it as not affecting their non-smoking
However, health promotion interventions with mentally ill people
status. It is necessary to intervene and change these habits and
should not be neglected. A small exploratory study among Asian men
beliefs in a way that is non-patronising and culturally
in contact with mental health services found that individuals’
appropriate. Furthermore, the detrimental effects of inhaling
assessments were insensitive to their religious views. Men received
cigarette smoke and supportive approaches to quitting all need to
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After long discussions with their clients, they elicited a belief
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be communicated in an appropriate dialect and a culturally
information yielded may not always be generalisable. Recently,
meaningful package of intervention.
inventories have been developed to ascertain cultural health beliefs
Psychiatric patients taking psychotropic medication are also
and indigenous explanatory models of distress (Bhui & Bhugra,
at risk of weight gain, which is also linked to poorer health. The
2002b). Kleinman (1988) proposed eliciting people’s ‘explanatory
standardised mortality rates for all causes are significantly higher
model’ by exploring with them their understanding of their
among people with schizophrenia than the general population.
problems. Some open-ended questions included: What is the
Specifically, circulatory, endocrine, nervous and respiratory
problem? Is it an illness? What causes it? What can be done about it?
disorders, alongside suicide and smoking-related diseases, are all
What can doctors do? This approach should be used before imposing
higher (Brown & Barraclough, 2000). Among those not
particular solutions on culturally different groups, so that
considered to have a mental illness, it is known that mortality
practitioners can gain a better appreciation of how service users
rates among South Asian groups are especially high for ischaemic
construct their difficulties and whether any health promotion advice
heart disease and diabetes (Balarajan, 1991; Balajaran et al,
is discordant with their beliefs about their problem and its alleviation.
1984), while Bangladeshi and African Caribbean people are at
In some pilot work, we found that Somalis and Punjabi
higher risk of death due to stroke, irrespective of mental health
Asians found it easier to think freely about distress depicted in
problems (Balarajan, 1995). Health promotion efforts should be
vignette material than to talk about their own distress. We were
aimed at these areas irrespective of the presence of mental illness.
able to elicit some culturally unique explanations for distress
To develop effective health promotion strategies for different
alongside more general issues including unemployment, racism,
ethnic groups, language, indigenous understandings and
possession by spirits, relationship problems and financial
sometimes competing views about the origin of disabilities,
hardship. Treatment approaches included seeing doctors and
taboos and appropriate ways of reaching groups all need careful
health professionals, but also culturally-informed and sanctioned
consideration. Where translation is necessary, it should be
approaches such as reciting religious scripts, using holy water and
conducted by bilingual and psychologically informed people who
seeking advice at mosques.
are grounded in the cultures of interest; technically precise
A key problem for practitioners is that models of mental
translations can be virtually unusable as health-promotional
illness and distress tend to be determined by evidence from
materials. The delivery package must be attractive and raise
research and practice that often assumes a degree of universality.
curiosity as well as engage the cultural groups of interest in the
Rarely are the expectations and culturally appropriate rules for
types of health problem being targeted.
treatment determined directly from service users. Service users are able to come up with innovative methods to manage their
Somalis’ and Punjabi Asians’ constructions own distress, even if these methods have not found a place in conventional therapies backed up by clinical trial evidence of mental distress: an example of (Warnes et al, 1998; Bhui et al, 1998). The more recent emphasis indigenous beliefs In order to focus health promotion efforts towards black and ethnic
on quality of life and user-defined outcomes, such as recovery, is
minority groups, there needs to be a developmental stage to explore
welcome, but has not found a place in health promotion
indigenous understandings of health and illness and the world-view
material. These concepts warrant greater research, exploration
of service users. Although there are no generally agreed methods for
and application, as they may be better indicators of improvement
doing this, ethnography and participant observation methods to
in function, irrespective of professionalised measures of symptom
explore cultures are useful. They are, however, time-consuming and
alleviation. Their validity in different cultural groups also needs
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exploration (Collinge et al, 2002; Onwumere & Bhui, 2002).
Publishers.
Mental health outcome measures and health promotion tools
Bhui, K., Aubin, A. & Strathdee, G. (1998) Making a reality of usercentred psychiatry services. Psychiatric Bulletin 22 (1) 8-11.
that are developed without attention to the limitations of these across cultural, linguistic and religious boundaries are less likely to have the desired effect. We have outlined the issues in developing a comprehensive approach to transcultural mental health promotion. All efforts should aim to maximise the chances of successful intervention in terms of health outcomes, not only in terms of greater knowledge. The impact of such interventions on the future mental health and well-being of ethnic groups remains to be demonstrated in future work. For more information contact Dr Kamaldeep Bhui on: Tel 02078827842 Email
[email protected] Department of Psychiatry, Barts & London Medical School, Institute of Community Health Sciences at Queen Mary University of London, London E1 4NS
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