Book List. 1. Macmillan Cancer Support Publications. All Macmillan publications
are free .... such as sex, thoughts of murder, .... The story of a family finding their.
Book List Macmillan Cancer Support Publications All Macmillan publications are free of charge to people affected by cancer and can be ordered online at www.macmillan.org.uk or through their helpline on 0808 808 2020 or the Macmillan YouthLine on 0808 808 0800 if you are between 12 and 21 years of age
Cancerbackup Publications All Cancerbackup publications are free of charge to people affected by cancer, their families and friends within the UK and can be ordered online at www.cancerbackup.org.uk or through their helpline on 0808 800 1234
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Coping with the emotional effects of cancer The experience of cancer is about more than just the physical effects of the disease and its treatment. There are emotional effects too, such as feelings of fear, anger, sadness or depression, and these are quite normal. They may come and go, or may seem to be there most of the time. Throughout their lives, people build up ways of coping with the events that life throws at them. If cancer proves to be one of those events, you may need support in calling on all your own ways of coping, and building up those coping strategies to meet the challenge you are now facing. There are many sources of support to help you deal with these feelings – not just professional help but also voluntary organisations, websites, books and support groups. These sources are described on our website and include national ones as well as those specific to Kent and Medway. You can draw on these resources to help keep yourself, or someone close to you, on the right track emotionally. Visit our website on
www.kentmedwaycancerguide.nhs.uk
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Information about Specific Cancers
Publisher
Title
Description
Understanding cancer of the bladder
Causes, symptoms, diagnosis and Cancerbackup treatment; living with a urostomy; details of useful organisations
Understanding cancer of Causes, symptoms, diagnosis and Cancerbackup the large bowel (colon treatment of bowel cancer; advice on financial issues; details of and rectum) useful organisations. Also available as an audiotape Understanding breast cancer
Describes causes, symptoms, Cancerbackup diagnosis, stages and treatment of breast cancer; includes details of useful organisations and other resources. Also available as an audiotape
Understanding secondary breast cancer
Describes breast cancer that has come back or spread to another part of the body; information on symptoms, treatment, recovery; details of useful organisations
Cancerbackup
Understanding cancers of the head and neck
Covers the different types of head and neck cancer, symptoms, diagnosis, treatment options, quality of life, feelings; details of useful information. Also available as an audiotape
Cancerbackup
Understanding acute lymphoblastic leukaemia
Causes, symptoms, diagnosis and Cancerbackup treatment options; sources of practical and financial support; details of useful organisations
Understanding acute myeloid leukaemia
Causes, symptoms and treatment options; sources of practical and financial support; details of useful organisations. Also available as an audiotape
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Cancerbackup
Title
Publisher
Description
Understanding chronic Causes, symptoms, diagnosis, Cancerbackup lymphocytic leukaemia staging and treatment; sources of practical and financial help; details of useful organisations Understanding chronic myeloid leukaemia
Symptoms, diagnosis and treatments; details of useful organisations
Understanding lung cancer
Causes, symptoms, diagnosis and Cancerbackup treatment options; information on clinical trials; sources of financial support; details of useful organisations. Also available as an audiotape
Understanding mesothelioma
Causes, symptoms, diagnosis, treatment options; who can help, financial help and compensation; details of useful organisations
Cancerbackup
Understanding nonHodgkin’s lymphomas
Diagnosis and treatment; sources of practical and financial support; details of useful organisations
Cancerbackup
Understanding cancer of the gullet (oesophagus)
Symptoms, diagnosis, stages and treatment options; self help and sources of support; details of useful organisations. Also available as an audiotape
Cancerbackup
Understanding cancer of the ovary
Causes and types of ovarian cancer, screening, symptoms, diagnosis, staging and grading and treatment options; self help and support, financial help; details of useful organisations. Also available as an audiotape
Cancerbackup
Understanding cancer of the pancreas
Risk factors, types, symptoms, diagnosis and treatment; self help and sources of support; details of useful organisations. Also available as an audiotape
Cancerbackup
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Cancerbackup
Title
Description
Publisher
Understanding cancer of the prostate
Causes, symptoms, diagnosis, treatment options, follow-up, emotional issues, support; sources of further information. Also available on CD
Cancerbackup
Understanding the PSA test
To help men decide whether to Cancerbackup have the PSA blood test; causes and symptoms of prostate cancer; treatment options; details of useful organisations. Also available as an audiotape
Understanding cancer of the skin
Deals with the two common types Cancerbackup of skin cancer; causes, symptoms, diagnosis and treatment; details of useful organisations. Also available as an audiotape
Understanding malignant melanoma
Types of malignant melanoma; causes, symptoms, diagnosis, staging, treatment options; details of financial benefits, useful organisations
Cancerbackup
Understanding cancer of the stomach (gastric cancer)
Causes, symptoms, diagnosis, stages and grading, treatment options; advice on self help and financial help and benefits; useful organisations
Cancerbackup
Information about Cancer Treatments Coping with chemotherapy
What to expect – what treatment is, how the drugs work and different ways they can be given
Understanding chemotherapy
What it is, why, when and how it is Cancerbackup given; most common side-effects; details of useful organisations. Also available as an audiotape 5
Sheldon Press
Title
Description
Publisher
Understanding radiotherapy
What it is, why it may be required, who’s involved, what happens, treatment and side-effects; details of useful organisations. Also available as an audiotape
Cancerbackup
General Information about Cancer Adjusting to life after cancer treatment
Covers emotional recovery, relationships, finances, further treatment, returning to work, useful contacts
Cancerbackup
Being a cancer patient’s carer: a guide
Information and advice about dealing with the most common problems faced by carers
Radcliffe Medical Press
Cancer and older people Information about cancer, treatment options, practical help and support and communicating with healthcare professionals
Cancerbackup
Caring for someone with cancer
Help in understanding cancer and basic treatments available
Age Concern
Caring for someone with advanced cancer
Includes advice on what to do after discharge from hospital, how to get practical help and support, help with money, useful contacts
Cancerbackup
Caring at home when cancer is advanced
Helps to explain the caring role and address the emotions, changes to relationships, getting help, money matters
Macmillan Cancer Support
Coping with advanced cancer
For people who have been told their cancer has come back or spread, their families and friends
Cancerbackup
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Title
Description
Publisher
Living at home when cancer is advanced
Information on practical support for people at home, emotional issues, dealing with symptoms
Macmillan Cancer Support
The Selfish Pig’s Guide to Caring
Written by a carer it airs topics such as sex, thoughts of murder, coping with incontinence and dealing with friends and officials who fail to understand
Polperro Heritage Press
What can I do to help?
75 practical ideas for family and friends from someone with cancer
ShortBooks
Challenging cancer: fighting back, taking control, finding options
Aims to help you make sense of Class Publishing your diagnosis and move away (London) Ltd. from chaos towards having control back in your life
Controlling cancer pain
Illustrated; about cancer pain and the wide range of medical and complementary treatments for controlling it
Cancerbackup
Controlling the symptoms of cancer
Common and less common symptoms; causes; medical and complementary therapies to help. Also available as an audiotape
Cancerbackup
Coping with fatigue
Discusses the causes and effects and ways of coping at home and work. Also available as an audiotape
Cancerbackup
Coping with hair loss
Illustrated; information and practical hints on wigs, scarves and turbans; useful organisations and contacts
Cancerbackup
Coping with long term illness
Tackles problems around isolation, financial issues, pain
Sheldon Press
Diet and cancer
Weight loss, extra energyprotein, sore or dry mouth, taste changes, difficulties eating, useful contacts. Also available as an audiotape
Cancerbackup
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Title
Description
Publisher
Directory of information materials for people with cancer 2006/2007
Directory of information and how to access it
Macmillan Cancer Support
Face to face with cancer
Information about tests, diagnosis and treatment, medical hierarchy, diet, exercise and relaxation, impact of fear, anxiety and anger
Lion Publishing Plc
Hello, and how are you?
Information handbook written by people who have cared for someone with cancer
Macmillan Cancer Support
Living with a long-term illness: the facts
Identifies challenges posed by long-term illness and suggests ways of dealing with them
Oxford University Press
Lost for words: how to talk to someone with cancer
Covers importance of talking and listening, how to be a good listener and how to help a person with cancer
Cancerbackup
Men and cancer
Cancer from a male perspective based on experiences of a group of men who have had cancer or cared for someone with cancer
Macmillan Cancer Support
Cancer. Any age, any time
Published in co-operation with the Men’s Health Forum, gives expert advice on all aspects of prevention and treatment in the unique Haynes Owners Manual Workshop style
Haynes Publishing
Relationships, sex and fertility for young people affected by cancer
Written for teenagers or young adults; how cancer and treatment may affect sexuality, fertility and relationships.
Cancerbackup
Sexuality and cancer
Impact of surgery, radiotherapy, chemotherapy and hormone therapy; suggests possible solutions. Details of useful organisations. Also available as an audiotape
Cancerbackup
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Title
Description
Publisher
Taking control of cancer
Getting information, treatment options, choices, self-help, personal stories
Class Publishing (London) Ltd.
Talking about your cancer
Simple, practical advice to help people with cancer talk about their needs and feelings
Cancerbackup
The cancer guide
Information for people with cancer and those who care
Macmillan Cancer Support
The emotional effects of cancer
Suggestions on how to deal with anxiety, anger, sorrow and withdrawal; common symptoms of depression
Cancerbackup
Travel and cancer
Covers insurance, vaccinations and immunisation, avoiding health problems; includes useful organisations
Cancerbackup
Trust me, I’m a cancer patient
Written from a personal perspective by a doctor, it offers practical and accessible advice
Radcliffe Medical Press
Work and cancer
Work issues during treatment and after, taking time off, discrimination, financial issues, giving up work for good; also work issues that may affect carers
Cancerbackup
Help with the cost of cancer
A guide to benefits and financial help for people affected by cancer
Macmillan Cancer Support
C: because cowards get cancer too
John Diamond’s personal experiences, from his column in “The Times”
Vermilion / Random House
Close relationships and cancer
Impact cancer has on relationships with partners, family and friends
Macmillan Cancer Support
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Title
Description
Publisher
Directory of cancer self help and support 2005/2006
Details of over 750 groups that support people with cancer, their relatives and friends
Macmillan Cancer Support
Cancer and complementary therapies
Therapies most often used and an idea of what is involved. Also available as an audiotape
Cancerbackup
Directory of complementary therapy services in UK cancer care
Services available in the voluntary and public sectors, arranged by county
Macmillan Cancer Support
Understanding cancer research trials (clinical trials)
What clinical trials are and how and why they are carried out; questions to ask before making a decision; how to find out where trials are being carried out
Cancerbackup
Understanding cancer genetics
The role of genes in specific cancers, how risk is inherited and role of genetic counselling and testing. Includes useful contacts
Cancerbackup
Hospice and palliative care directory – 2006
Details of organisations offering hospice and palliative care services
Hospice Information
Death and Bereavement When someone with cancer is dying
Considers some of the anxieties commonly experienced by those who are dying, and their families and friends
Macmillan Cancer Support
Living and dying with cancer
Follows the impact of the disease from diagnosis, through treatment to death
Cambridge University Press
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Title
Description
Publisher
After the death of someone very close
Guide to the emotions commonly experienced during the grief of bereavement
Cruse Bereavement Care
Dying with cancer
Includes coping with the news, facing an uncertain future, choosing where to die, symptom control, putting affairs in order, useful organisations and books
Cancerbackup
A Child’s Grief
Supporting a child when someone in the family has died
Winston’s Wish
Badger’s Parting Gifts
The tale of an old badger near to death; illustrated in colour throughout
HarperCollins
Milly’s Bug-Nut
The story of a family finding their way through bereavement
Winston’s Wish
When someone dies
Help for young people coping with grief
Cruse
People with learning difficulties Title
Description
Publisher
Looking after my breasts
Ideally should be used to prepare women with learning disabilities before they go for mammogram / breast screening tests or to increase their breast awareness
Royal College of Psychiatrists
Getting on with cancer
“Books Beyond Words” series; tells the story of Veronica, a woman with Down’s Syndrome, who has cancer
Royal College of Psychiatrists
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Children and Young People Title
Description
Publisher
Why Mum? A small child Children’s picture book exploring dealing with a big the serious illness of a parent problem through the eyes of 7-yr-old Matthew
Verita
A parent’s guide to children’s cancers
For parents who have a child diagnosed with cancer
Cancerbackup
A Child’s Grief
Supporting a child when someone in the family has died
Winston’s Wish
Badger’s Parting Gifts
The tale of an old badger near to death; illustrated in colour throughout
HarperCollins
As Big as it Gets
Supporting a child when someone in their family is seriously ill; includes some suggestions about what parents might say to children and how to offer support
Winston’s Wish
Talking to children about How to talk about cancer with cancer: a guide for children from 2-16; includes parents and carers details of useful organisations and other resources. Also available as an audiotape
Cancerbackup
Talking to children when an adult has cancer
Support and advice on whether, when and what to tell; includes advice on explaining about treatment and talking about dying
Macmillan Cancer Support
Mary has a brain tumour
Mary’s story through diagnosis, surgery, chemotherapy and radiotherapy; illustrated
CLICSargeant
My brain tumour adventures
The story of a little boy coping with a brain tumour, for 2-7 year olds; illustrated
Jessica Kingsley Publishers
Ben’s bone marrow transplantation
Illustrated book for children who need a bone marrow transplant
UK Children’s Cancer Study Group
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Title
Description
Publisher
Health issues: cancer
Explains how cancer occurs, common cancers, possible causes, symptoms, diagnosis and treatment
Hodder & Stoughton Childrens
Lucy has a tumour
Booklet written to help young children understand about having a tumour
CLICSargeant
My brother has cancer
The story of a brother and sister whose little brother has cancer; aimed at children under 9
UK Children’s Cancer Study Group
Need to Know: cancer
Need to Series looks at a range of different cancers; treatments such as chemotherapy and radiotherapy
Heinemann
The Secret C: straight talking about cancer
Aimed at supporting parents or carers to explain to their child what cancer means; aimed at 710 yr olds
Winston’s Wish
What’s it like? Cancer
Introduces 5-7 yr olds to conditions and disabilities that may affect them, or their friends and family
Heinemann
Milly’s Bug-Nut
The story of a family finding their way through bereavement
Winston’s Wish
When someone dies
Help for young people coping with grief
Cruse
Jack’s Diary
An illustrated book for children with leukaemia; includes photographs
Leukaemia Research
Joe has leukaemia
Colour illustrated book telling the story of a boy with leukaemia
Leukaemia Research
Living with leukaemia
Following the real-life experiences of children with leukaemia; colour illustrated; index of further information
Hodder & Stoughton Children’s
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Title
Description
Publisher
Two Weeks with the Queen
Colin’s quest to find the best doctor in the world for his brother who has cancer
Puffin Classic
Peppermint Ward
A story about children with cancer; Cancerbackup written for 6-9 yr olds
Audio-visual Materials Cancerbackup Audiotapes: • • • • • • • • • • • • • • • • • • • • • • • • • • •
Understanding cancer of the large bowel (colon and rectum) Understanding breast cancer Coping with advanced cancer Adjusting to life after cancer treatment Caring for someone with advanced cancer Diet and cancer Controlling the symptoms of cancer Coping with fatigue Coping with hair loss Controlling cancer pain The emotional effects of cancer Sexuality and cancer Talking about your cancer Talking to children about cancer – a guide for parents and carers Understanding chemotherapy Cancer and complementary therapies Understanding radiotherapy Understanding cancers of the head and neck Understanding acute myeloid leukaemia Understanding lung cancer Understanding cancer of the gullet (oesophagus) Understanding cancer of the ovary Understanding cancer of the pancreas Understanding the PSA test Understanding cancer of the skin Understanding cancer of the stomach (gastric cancer) Understanding cancer of the prostate (CD)
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Other Audiotapes, CDs, Videos and DVDs •
Relax and breathe: learn to manage breathlessness (Macmillan Cancer Support) – CD
•
The Cancer Guide: information for people with cancer and those who care (Macmillan Cancer Support) – large print and Braille versions available; audiotape will be available later in 2007
•
You’re not alone coping with cancer: some personal experiences of coping with the diagnosis of cancer (Jimmy Logan Memorial Cancer Trust) – DVD
•
Chemotherapy and radiotherapy: by patients for patients (Cancerbackup) – video
•
Talking about leukaemia: made by people with leukaemia (Leukaemia Research) – video plus illustrated booklet
•
Life with lung cancer: three people talk about their experiences (British Lung Foundation) – DVD and video
•
Take a breather: demonstrates practical techniques to cope with breathlessness (Roy Castle Lung Cancer Foundation) – DVD and video
•
Understanding non-Hodgkin’s lymphomas: patients talk about their personal experience (Lymphoma Association) – video
•
Men Talk: 7 men who have had prostate cancer talk about their experiences (The Prostate Cancer Charity) – CD and audiotape
•
Treatment options in early prostate cancer: a number of men talk about their experiences (Prostate Research Campaign UK) – DVD and video
•
Your BSL guide to the prostate (The Prostate Cancer Charity) – DVD and video
Audio-visual materials in other languages •
Chemotherapy and radiotherapy: by Asian patients for Asian patients (Cancerbackup) – video available in Urdu, Hindi, Gujerati and Bengali
•
Humar safar: a south Asian family’s experience (Cancerbackup) – video in Hindi, with English subtitles
•
Caring for someone with cancer: follows the experience of a person with cancer and their carer (Afiya Trust) – CD available in Arabic, Bengali, Cantonese, French African, Gujerati, Hindi, Punjabi, Somali, Tamil and Urdu
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Kent & Medway Cancer Network Preston Hall, London Road, Aylesford, Kent ME20 7NJ Tel: 01622 713146 Email: www.kentmedwaycancernetwork.nhs.uk
Version 1 – Published July 2007 16
