Measuring Parent Satisfaction with Nursing Care Professor in Clinical Nursing
Faculty Disclosure Jos Latour X
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Learning Outcomes To describe importance of parent’s involvement in the care of their child To identify methods to measure parent satisfaction
EFCNI White Paper 23 November 2011
Launch of White Paper at the European Parliament Caring for tomorrow EFCNI: European Foundation of the Care of Newborns and Infants
EFCNI White Paper 13 Recommendations in White Paper: • • • •
Address health inequalities in maternal and newborn care Provide social and financial support to parents and families Monitor outcomes and implement audit procedures Implement European wide standardised datasets
White Paper and benchmark report www.efcni.org
Domains of Practice
Benner P, et al: Clinical Wisdom and Interventions in Acute and Critical Care: A Thinking-in-Action Approach. New York: Spinger Publishing Company, 2011
Caring for Patients Families Ensuring that the family can be with the patient Providing the family with information and support Encouraging family involvement in caregiving activities Benner P, et al: Clinical Wisdom and Interventions in Acute and Critical Care: A Thinking-in-Action Approach. New York: Spinger Publishing Company, 2011
Recommendations Develop and test parent reported outcome measures that are sensitive to the quality and safety Develop, implement and test interventions that facilitate parent involvement in the care Evaluate the long-term psycho-social impact of a child’s critical illness on family outcomes
Family-Centered Care Definition The professional support of the child and family through a process of involvement, participation, and partnership, underpinned by empowerment and negotiation’ Smith et al. 2002
Parent Reported Outcome knowledge sharing
knowledge building key clinical
organisational
healthcare
standards
factors
professionals structure
process shared empowerment
Quality care
quality
quality & safety
outcome
shared policy making
cost-effectiveness
data children parent satisfaction
Latour JM et al. the PICTURE project 2013
child parents
shared values
public authorities
Empowerment of Parents Parental reported outcome measures • Surveys • Interviews • Possibility to change clinical practice • Attitude of nurses to learn from parents
EMPATHIC questionnaire EMPATHIC-30 questionnaire 5 Domains with 30 questions • • • • •
Information (5 questions) Care and Treatment (8 questions) Organisation (5 questions) Parental Participation (6 questions) Professional Attitude (6 questions) Latour JM et al. Intensive Care Medicine 2009;35:1082-1089 Latour JM et al. Intensive Care Medicine 2011;37:310-318 Latour JM et al. Intensive Care Medicine 2011;37:319-325 Latour JM et al. Pediatr Crit Care Med 2012;13:554-559 Latour JM et al. Journal of Clinical Epidemiology 2013;66:1045-1055
Parent outcomes High ratings given to satisfaction items But… items below standard in PICU and NICU: • • • • •
Daily consultation with the physician Discharge planning Noise levels and bed space Involvement in decision-making on care and treatment Differences in information provision by nurses and physicians
Latour et al. Pediatr Crit Care Med 2012;13:554-559 Latour JM et al. J Clin Epidemiol 2013;66:1045-1055
Benchmarking information
care & cure
professional attitude
parental participation
organization
UMCe
Parent outcomes Questionnaire provide space to write experiences >85% of parent write stories
Often positive, but suggestions for improvements
Parent outcomes Follow-up services
van Dijk M,…Latour JM. Parental perceptions and satisfaction with follow-up services for children with major congenital anomalies. Child: Care, Health and Development 2010;36:101-109
Today’s Perspectives – EAPS congress • EVALUATING PARENT SATISFACTION WITH MEDICAL CORRESPONDENCE FOLLOW UP METHODS AFTER A CARDIOLOGY OUTPATIENT CLINIC VISIT IN OUR LADY'S CHILDREN HOSPITAL, IRELAND 039: M. Bahari, Ireland • SATISFACTION QUESTIONNAIRE IN A NEONATAL INTENSIVE CARE UNIT: OUR 5 YEARS' EXPERIENCE 351: M. Feldman, Israel • THE FIRST POLISH STUDY ON PARENT SATISFACTION IN PAEDIATRIC INTENSIVE CARE UNIT - THE EMPATHIC-30 POLAND STUDY 338: M. Migdal, Poland • Basic and Clinical Science; The Family Hall K; Tuesday, October 21, 09:00-10:30 • Basic and Clinical Science; The Parents View on NICU Care Hall G; Monday, October 20, 09:00-10:00
Future perspectives Empower parents
Collaborate with parents Learn from parent reported outcomes Synergise the outcome measures of your work
Thank you for your attention
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