IDeA for Inclusion
Informed Decisions and Actions for Inclusion
January 2014
The team Virginie Cobigo is a Clinical Psychologist and Assistant Professor in the School of Psychology at the University of
IDeA for Inclusion aims to support evidence-based practices and policies in the field of intellectual and developmental disabilities.
Ottawa. She has been working in the field of intellectual disabilities for more than 15 years. Natasha Plourde and Whitney Taylor are students in the Doctorate in Psychology. Crystal Samson and Rawad Mcheimech are completing their Honours Theses. Vanessa Dubuc is the recipient of the Undergraduate Research
Hello everyone, Last July, I was pleased to join the team of Professors in the School of Psychology at the University of Ottawa, as well as the Centre for Research on Educational and Community Services. This is the first of a series of newsletters from IDeA for Inclusion. I thus hope to keep you informed about the team’s activities. Do not hesitate to contact me to learn more about us. I wish you a year full of joy, health and friendships!
Opportunity Program bursary. Philip Grandia is research coordinator. Sharon Walker is consultant.
Virginie Cobigo
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Fostering a culture of continuous quality improvement in services for persons with intellectual and developmental disabilities.
“I know people who make me feel important”
About MAPS Visit our website : www.mapsresearch.ca Follow us on Twitter @maps_research
MAPS (Multidimensional Assessment of Providers and Systems) is a research program to inform the assessment of services and supports for adults with intellectual and developmental disabilities, in Ontario, Canada. MAPS is a provincial interdisciplinary team led by Hélène Ouellette-Kuntz, Queen’s University at Kingston. For more information, please visit our website: www.mapsresearch.ca. Within MAPS, I work with other researchers, persons with intellectual and developmental disabilities, their parents, and service providers, to better define social inclusion. By reading and talking together, we agreed that social inclusion describes how each person has opportunities to contribute and feel that they belong to their communities. To “contribute to your community” means to give your personality, time, skills, talents and ideas, to the people where you live, where you work, and those you have fun with.
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To “belong to your communities” means you feel a part of and connected to the people you spend time with. You feel happy and positive when you are with them. They know your name, they like you, they help you if you need help, and they make you feel special and important. It is important that services and supports enhance the social inclusion of persons with intellectual and developmental disabilities. Sources Cobigo, Ouellette-Kuntz, Lysaght, & Martin (2012) Shifting our conceptualization of social inclusion. Stigma Research and Action, 2, 75-84. Free access: http://stigmaj.org/article/view/45. Cobigo, Ouellette-Kuntz, Hickey, Lunsky, Lysaght, Martin. Multidimensional Assessment of Providers and Systems: Informing Quality Improvement Practices in Ontario's Developmental Services System. Department of Public Health Sciences, Queen's University. See: www.mapsresearch.ca
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As part of MAPS, I also lead the work on the assessment and improvement of the quality of services for adults with intellectual and developmental disabilities in Ontario. We consulted with Ontarians with intellectual and developmental disabilities, their parents, service providers, as well as representatives of the Ministry of Community and Social Services. Ontarians with intellectual and developmental disabilities and their families ask that the quality of the services they receive be assessed according to the impact on their lives, and that their opinions be considered in the assessment. Service providers and decision-makers want the assessment to provide information on the improvements to be made to services and policies so that they have the desired impact on the lives and social inclusion of persons with intellectual and developmental disabilities. Therefore, it is necessary that the assessment of services focus on: (1) the outcomes for services users, (2) service users’ perception of the quality of the services they receive, and (3) the implementation of strategies that are likely to enhance the social inclusion of persons with intellectual and developmental disabilities. It is also important that everybody, including service providers, decision-makers, persons with intellectual and developmental disabilities and their families, as well as researchers, commit to work together. Service assessment should provide relevant information to improve services, policies and research. We should all commit to change our opinions and actions based on the knowledge developed through the assessment.
February 12, 2014, 9:30-11:00 Quality Improvement in Developmental Services: What you need to know. The Community Network of Specialized Care and MAPS invite you to a training session by videoconference. To register, please contact your local Telemedicine Coordinator or Community Networks of Specialized Care location. Central Ontario Network of Specialized Care: Tony Gougeon, 705-526-0311 ext 355
[email protected] Eastern Ontario Network of Specialized Care: Pete Fowler 613-548-4417, ext. 1107
[email protected] Northern Ontario Network of Specialized Care: Rosanne Stein, (705) 645-7478 ext. 3221
[email protected] Southern Ontario Network of Specialized Care: Karen Araujo 1-800-640-4108 ext. 2226
[email protected]
MAPS thanks the Ministry of Community and Social Services for its financial support. 3
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IDeA for Inclusion also contributes to the research program Health-Care Access and Developmental Disabilities (H-CARDD). Its primary goal is to enhance the overall health and well-being of people with developmental disabilities through improved health care policy and services. H-CARDD research is conducted by dedicated teams of scientists, policymakers, and health care providers, working collaboratively under the direction of Dr. Yona Lunsky. The H-CARDD team is the first one to link data about the use of health-care services covered by the provincial health insurance, and data on the beneficiaries of the Ontario Disability Support Program. By doing so, HCARDD identified 66,484 adults aged 18 to 64 coded as having a developmental disability between April 2009 and March 2010.
www.hcardd.ca @HCARDD In December 2013, H-CARDD published its first report. You may download it for free from our website.
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It is the largest cohort of adults with developmental disabilities ever used in research to date. Within H-CARDD, I co-lead, with Hélène Ouellette-Kuntz, research on cancer screening and medication use.
A few findings Adults with developmental disabilities were less likely to undergo recommended screening for the three types of cancer studied: breast, cervical and colorectal cancers. Nearly half of the adults with developmental disabilities were dispensed multiple medications, with 22% being dispensed five or more medications concurrently. The most commonly dispensed medications were for mental health and behavioural problems, and antipsychotics were the most commonly dispensed medication. Sources Cobigo, Ouellette-Kuntz, Lake, Wilton, Lunsky, Medication use. & Ouellette-Kuntz, Cobigo, Balogh, Wilton, Lunsky. Secondary prevention. In: Lunsky Y, Klein-Geltink JE, Yates EA, eds. Atlas on the Primary Care of Adults with Developmental Disabilities in Ontario. Toronto, ON: Institute for Clinical Evaluative Sciences. Download it for free at www.hcardd.ca
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H-CARDD is pursuing its activities. In the coming years, IDeA for Inclusion will contribute to HCARDD by studying: • The health of women with intellectual and developmental disabilities, in collaboration with Simone Vigod, Women’s College Hospital, Toronto. • Uptake of an annual health examination among adults with intellectual and developmental disabilities, in collaboration with Hélène Ouellette-Kuntz, Queen’s University.
H-CARDD thanks the Canadian Institutes for Health Research and the Ontario Ministry of Health and Long Term Care for their financial support, as well as the Ministry of Community and Social Services for its collaboration.
You may contact me: Virginie Cobigo Assistant Professor, School of Psychology, University of Ottawa Senior Researcher, Centre for Research on Educational and Community Services Director, IDeA for Inclusion Vanier Building, Room 5083 136 Jean Jacques Lussier, Ottawa, ON K1N 6N5 Phone: 613-562-5800 (or toll free number: 1 877 868 8292) ext. 7753 Email:
[email protected]
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