Measuring Parent Satisfaction with Nursing Care

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Nov 23, 2011 - Address health inequalities in maternal and newborn care. • Provide ... Family-Centered Care ... But… items below standard in PICU and NICU:.
Measuring Parent Satisfaction with Nursing Care Professor in Clinical Nursing

Faculty Disclosure Jos Latour X

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Learning Outcomes To describe importance of parent’s involvement in the care of their child To identify methods to measure parent satisfaction

EFCNI White Paper 23 November 2011

Launch of White Paper at the European Parliament Caring for tomorrow EFCNI: European Foundation of the Care of Newborns and Infants

EFCNI White Paper 13 Recommendations in White Paper: • • • •

Address health inequalities in maternal and newborn care Provide social and financial support to parents and families Monitor outcomes and implement audit procedures Implement European wide standardised datasets

White Paper and benchmark report www.efcni.org

Domains of Practice

Benner P, et al: Clinical Wisdom and Interventions in Acute and Critical Care: A Thinking-in-Action Approach. New York: Spinger Publishing Company, 2011

Caring for Patients Families Ensuring that the family can be with the patient Providing the family with information and support Encouraging family involvement in caregiving activities Benner P, et al: Clinical Wisdom and Interventions in Acute and Critical Care: A Thinking-in-Action Approach. New York: Spinger Publishing Company, 2011

Recommendations Develop and test parent reported outcome measures that are sensitive to the quality and safety Develop, implement and test interventions that facilitate parent involvement in the care Evaluate the long-term psycho-social impact of a child’s critical illness on family outcomes

Family-Centered Care Definition The professional support of the child and family through a process of involvement, participation, and partnership, underpinned by empowerment and negotiation’ Smith et al. 2002

Parent Reported Outcome knowledge sharing

knowledge building key clinical

organisational

healthcare

standards

factors

professionals structure

process shared empowerment

Quality care

quality

quality & safety

outcome

shared policy making

cost-effectiveness

data children parent satisfaction

Latour JM et al. the PICTURE project 2013

child parents

shared values

public authorities

Empowerment of Parents Parental reported outcome measures • Surveys • Interviews • Possibility to change clinical practice • Attitude of nurses to learn from parents

EMPATHIC questionnaire EMPATHIC-30 questionnaire 5 Domains with 30 questions • • • • •

Information (5 questions) Care and Treatment (8 questions) Organisation (5 questions) Parental Participation (6 questions) Professional Attitude (6 questions) Latour JM et al. Intensive Care Medicine 2009;35:1082-1089 Latour JM et al. Intensive Care Medicine 2011;37:310-318 Latour JM et al. Intensive Care Medicine 2011;37:319-325 Latour JM et al. Pediatr Crit Care Med 2012;13:554-559 Latour JM et al. Journal of Clinical Epidemiology 2013;66:1045-1055

Parent outcomes High ratings given to satisfaction items But… items below standard in PICU and NICU: • • • • •

Daily consultation with the physician Discharge planning Noise levels and bed space Involvement in decision-making on care and treatment Differences in information provision by nurses and physicians

Latour et al. Pediatr Crit Care Med 2012;13:554-559 Latour JM et al. J Clin Epidemiol 2013;66:1045-1055

Benchmarking information

care & cure

professional attitude

parental participation

organization

UMCe

Parent outcomes Questionnaire provide space to write experiences >85% of parent write stories

Often positive, but suggestions for improvements

Parent outcomes Follow-up services

van Dijk M,…Latour JM. Parental perceptions and satisfaction with follow-up services for children with major congenital anomalies. Child: Care, Health and Development 2010;36:101-109

Today’s Perspectives – EAPS congress • EVALUATING PARENT SATISFACTION WITH MEDICAL CORRESPONDENCE FOLLOW UP METHODS AFTER A CARDIOLOGY OUTPATIENT CLINIC VISIT IN OUR LADY'S CHILDREN HOSPITAL, IRELAND 039: M. Bahari, Ireland • SATISFACTION QUESTIONNAIRE IN A NEONATAL INTENSIVE CARE UNIT: OUR 5 YEARS' EXPERIENCE 351: M. Feldman, Israel • THE FIRST POLISH STUDY ON PARENT SATISFACTION IN PAEDIATRIC INTENSIVE CARE UNIT - THE EMPATHIC-30 POLAND STUDY 338: M. Migdal, Poland • Basic and Clinical Science; The Family Hall K; Tuesday, October 21, 09:00-10:30 • Basic and Clinical Science; The Parents View on NICU Care Hall G; Monday, October 20, 09:00-10:00

Future perspectives Empower parents

Collaborate with parents Learn from parent reported outcomes Synergise the outcome measures of your work

Thank you for your attention

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