Of those items that the participant selected âYesâ, the median number of hours ... 26.4%. No impact. 36.8%. 4) The cognitive demands of typical activities (e.g.,.
Appendix: Variable Map Variable Service Utilization
N
Item(s)
385
Does your child currently receive early intervention or early childhood special education services? If so, how many hours per week? Speech and language therapy Occupational Therapy Physical Therapy Medical/private specialized preschool program Public special education preschool Other therapy/services
Child’s Functional Performance
281
PEDI-CAT Norm Score Daily Activities
288
PEDI-CAT Norm Score Mobility
289
PEDI-CAT Norm Score Social
Response options/Variable creation Yes, No Of those items that the participant selected “Yes”, the median number of hours per week for total services used
Normative score for each domain To model functional performance, we performed a confirmatory factor analysis with all three items loading onto 1 latent construct of functional performance.
Severity of Child’s Functional Limitations
388
Please indicate if your child has difficulty in the following ways: Mobility Processing information Seeing Hearing Communicating with others Self-feeding Bladder and bowel control Paying attention Safety awareness
3-point scale (no problem to big problem) Severity of child’s functional limitations is represented by the mean number of functional limitations reported per case
Controlling behavior Managing emotions Reacting to sensations Demographic
395
Factors
Perceived Environmental Support
394
1) Which category represents your total family income before taxes?
1) 17 categories (dollar amounts include a range in $5,000 increments; 1= Less than $5,000, 2 = $5,000-$10,000, and so forth)
2) What is your child’s age?
2) Children’s ages ranged from 1-71 months
Do the following things in your home environment help or make it harder for your child to participate in these activities at home?
3-point scale (usually helps, sometimes helps/sometimes makes harder, usually makes harder)
1) The physical layout (e.g., having organized, open, clean, safe space at home) Response Usually makes harder Sometimes helps/makes harder Usually helps No impact
% Total 3.3% 12.7% 61.2% 22.8%
2) Sensory qualities of home (e.g., amount and/or type of sound, light, smell, temperature, texture of objects) Response
% Total
Usually makes harder
1.2%
Sometimes helps/makes harder
13.5%
Usually helps
45.7%
No impact
39.6%
3) The physical demands of typical activities (e.g.,
To compute the home environment supports total, we summed responses for the home setting and divided the sum by the maximum possible score, and multiplied by 100.
strength, endurance, coordination) Response
% Total
Usually makes harder
11.7%
Sometimes helps/makes harder
25.1%
Usually helps
26.4%
No impact
36.8%
4) The cognitive demands of typical activities (e.g., concentration, attention, problem-solving) Response
% Total
Usually makes harder
12.0%
Sometimes helps/makes harder
29.0%
Usually helps
31.3%
No impact
27.7%
5) The social demands of typical activities (e.g., communication, interacting with others) Response
% Total
Usually makes harder
6.3%
Sometimes helps/makes harder
34.3%
Usually helps
31.3%
No impact
28.7%
6) Your child’s relationships with family members in the home (spouse or partner, siblings, grandparent, extended family) Response
% Total
Usually makes harder
1.0%
Sometimes helps/makes harder
15.5%
Usually helps
63.4%
No impact
20.1%
7) The attitudes and actions of babysitters, therapists, and other professionals who care for your child at home Response
% Total
Usually makes harder
1.3%
Sometimes helps/makes harder
9.0%
Usually helps
48.0%
No impact
41.7%
8) Policies (e.g., residential and workplace policies, such as family leave or working from home, time off, work hours) Response
% Total
Usually makes harder
6.9%
Sometimes helps/makes harder
15.0%
Usually helps
28.4%
No impact
49.7%
Are the following available and/or adequate to support your child's participation at home? 1) Services in the home (e.g., therapists, babysitters, etc.)
Response
% Total
Usually no
5.6%
Sometimes yes/no
13.0%
Usually yes
32.8%
Not needed
48.6%
2) Supplies in the home (e.g., having toys, food, furniture, diapers, clothes, money, television, computer, phone, heat, electricity, internet access) Response
% Total
Usually no
1.0%
Sometimes yes/no
4.4%
Usually yes
94.6%
3) Information (e.g., about activities, services, programs) Response
% Total
Usually no
1.0%
Sometimes yes/no
11.6%
Usually yes
87.4%
4) Do you (and your family) have enough time to support your child’s participation at home? Response
% Total
Usually no
3.1%
Sometimes yes/no
16.7%
Usually yes
80.2%
5) Do you (and your family) have enough money to support your child’s participation at home?
Home Involvement
394
Response
% Total
Usually no
4.9%
Sometimes yes/no
20.2%
Usually yes
74.9%
Think about 1 or 2 activities of this type that your child does most often. Typically, how involved is your child in: Getting rest? Personal care management? Getting clean? Mealtime? Cleaning up? Meal preparation? Taking care of other family members? Laundry and dishes? Arts, crafts, stories, music? Screen time? Indoor play and games? Celebrations at home? Houseguests?
5-point scale (from not very involved to very involved) To model home involvement, we performed a confirmatory factor analysis with all thirteen items loading onto 1 latent construct of home involvement.
